Monday, August 31, 2015

Life, big girl & chronic pain

How I love summer and it is slipping away too quickly and I am appreciating the warmth even on the hot muggy days.  At the beginning of the summer we went out shopping for a dining set for our deck but ended up buying a conversation sofa set.  Best decision ever.  Every morning I have my tea curled up on the sofa and soaking up the sun.  When the pelvic pain becomes too much  I just lay there watching my girl play with her water table.   My husband doesn't like the hot weather so he is usually out on the deck only at night but we have both been using it a lot so worth every penny we spent.

On other news my girl is turning 4 years old and over the last few months she has been so interested in actually playing and conversing with other kids.   My nieces and nephews are much older than her so she really doesn't have anyone to play with on a regular bases so we decided it is time to put her in part time daycare.  I found a place I liked that is reasonably priced.  We visited 3 daycares and I liked one the best but it was a little pricey.  I also felt they are too focused on learning and not enough on play.  A 4year old just needs a lot of play and I think kindergarten is enough to get them prepared for school.  So I picked a place that fits in a lot of play.  On the three days that she is home we will redo the alphabets with small letter recognition and may be start on teaching her how to read.  I also plan on continuing to teach her our native language.

This week she went to preschool for 2 hours just to see how she would manage.  Over the week we have been playing school with all her little dolls and talking about it.  So on Thursday morning I told her that she was going to her playgroup.  She was so excited and was dancing around and she also understood that mommy and daddy will drop her off and go home and come back later.  When we arrived at the preschool the kids were having circle time and as soon as we walked in the teacher asked her to hang up her backpack and sit with the kids and asked her name.  Wes snuck out after that
 and she didn't even look back.  She was so ready.  If DH wasn't with me I would have went home and cried. I was happy but felt a little sad.  She has never been away from me or my husband.   Instead we went for coffee and talked about our childhood :).  It just feels like yesterday when we brought  the 5 lb little baby.  When we went back to pick her up she was happy to see us.  Didn't get a chance to talk to her teachers since they were busy with getting the kids ready for lunch.  So next week she officially starts.  If it wasn't for the expense I would have liked to do four half days but didn't find an option that was not too expensive.

Of course I have to talk about my reproductive organs in ever post. After all my day is spent fighting the terrible pelvic pain.   The last few weeks my pain has been up the roof. The fatigue is much better and it is due to drinking Red clover leaf tea ever other day.  That staff really works, it also minimized the increased pain associated with follicular phase.  If I could I would drink it everyday but last time I did that my CM was no show so I try to not overdo it.  But this cycle It seem like my hormones have
normalized but that means more pain as endometrial implants respond to the increased hormone.  Well I think that is what's happening.  I am in so much pain that I have been sleeping on the floor for the last three nights.  It seem like the hard surface decreases the internal organs movement.  I feel that on the left side something has stuck to my colon.   I was suppose to do am MRI but insurance did not approve it and they want an ultrasound done before an MRI.  My doctor is joining another practice and his old office will not tell me where he is going.  They actually said he won't be seeing patients at his new position which is a lie.  When I saw him last he said he is joining another practice but has a non-compete agreement that is for a year so he is moving to my state so he can practice. So now I have to wait until his new information appears on the Internet.   Otherwise I will have to pick another doctor in his old practice.  The reason I went to him is because he is one of the better specialist on endometriosis.   The waiting is killing me.  I should stop the rumbling here.

Saturday, August 8, 2015

Alive and kicking

1. My computer is having so many issues and I haven't been able to use it much and the motivation for blogging is not there.  Truthful, I really don't have anything interesting to say.  Our life is the same routine which is fine but not so much fun :)

2. We are enjoying summer, as much as my physical well being allows it.  There are days I prefer to just stay home curled up on my sofa nursing my pain.  My little girl is growing up so fast and she is just so adorable and precious.  She will be turning 4 next month and she talking a lot.  She is constantly asking questions and making me laugh.   She will be going to daycare for 2days/wk ones summer is done.   I am happy that she will spend time with her age group but I will have to do the drop off/pick up and there are day where my pain level is through the roof and driving becomes challenging so I am a little worried.

3.  Health wise I went to see the GYN that I saw last year.  The first time I went to see him was to determine if I had scar tissue in my uterus which came up negative and I haven't seen him since then. Since I had two cycles where I had a lot of menstrual cramping and no AF I was a little worried and wanted for him to do an ultrasound and also wanted to hear his suggestion on how to minimize the endometriosis pain.  The visit went better than I expected.  He thinks I may have adenomyosis and he wanted to do an MRI and go from there.  He also suggested I try the Mirena for the pain.  I have never done well on any hormone treatment so far so I am hesitant to go that route but I have no other choice unless I go get everything removed.  The Mirena will put a stop to the possibility of a miracle baby but it has to be done.  I have heard a lot of horror stories about the Mirena but some swear by it for Endo pain management.  I am fighting with insurance to approve the MRI and we will go from   there.  I also got blood work done for LH, FSH and estradiol.  They were all within a normal range.  
The FSH is on the high side at 12.5 but seems expected for my age.  The day after the blood draw AF showed up after disappearing for two cycles.  It appears that I am ovulating but sometimes no AF.  I knew I was ovulating since I have mid cycle pain and also the usually hormonal shift.  

4. It has been 3years since I quit work.  I need to go back hence #3.  I am hoping the Mirena will work some.  In order for me to consider going back I need to control the pain, get rid of the migraine like headaches but most importantly kick the fatigue.  I assume that if we control the pain the other two will be resolved.  One thing is for sure, I will not go back and struggle as I did before having my baby.  I never want to go back to the daily agony of working while in pain and fatigued.  Just thinking about those days give me anxiety.

5. We are planning to visit DH's family in the winter.  It will at least be for a month.  Instead of being excited to be able to go and see my home country,  I am nervous.  I can deal with the pain some how but I don't know how I would deal with the fatigue and hormonal ups/downs.   The pycnogenol was helping a lot but after a while it started giving me stomach ache so I stopped it.   LDN helped some too but I can't tolerate taking it at night anymore.  I am going to try taking it during the day and see how I do.  Red clover tea has helped some too but not enough.  I want to be well prepared for the trip so we can all enjoy it.   After all escaping winter for a whole month is something to look forward too.

6. I love summer.  The extended daylight is just wonderful.  It is going so fast and we are enjoying it as much as possible.  My DH doesn't like hot weather so when it gets too hot he doesn't want to go out much but I tried to spend as much time on our deck as possible.