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Tuesday, July 16, 2013
Update
On TTC front I went back to my Napro Dr. a few weeks ago. I was on Estradiol and progesterone for the last four months and still spotted and my luteal phase was short for 2 cycles. Never had this problem when I was taking meds prior to pregnancy. I went back with the determination of getting all that can be tested and giving the pregnancy thing one last shot. So right now I am doing the cycle long hormonal profile and will have an ultrasound and HSG shortly. I am also going to start taking LDN again. The endometriosis is getting worse and I have pain all the time. Since I am home and it is somewhat manageable. If I am hurting I have the option of laying down and taking it easy. The Dr. suggested another surgery which I refused. It would be my last option and I wouldn't only go there If my pain becomes intolerable. It took me forever to recovery from the last surgery, I am emotionally scared by it. So my plan is we will try to conceive for another year and if it doesn't happen we will close that chapter. I really want to give MH a sibling, and I want another baby. Heck I want three or more. Part of me says I got pregnant once then then chance of it happening is high. However, the infertile me kicks in and says that one time is just a one time and my body is broken. Yes my body is broken, I have headaches all the time, I get tired easily and I am in pain constantly so I know the reality. I am also pushing 40 so if it happens it will be a miracle. But if no child comes out of this that is OK. I have my one and I am thankful.
We live 5 min from our local hospital and there is a LabCorp next door. I can even walk to it and have my blood draws. I still can't drive far without being in pain. No one understands it since I am standing and waking around and look fine. Since I have to use my right foot for driving the action of pressing on gas or brake repeatedly aggravates the pain. Most of the pain I have is on the right. During an internal examination at the Napro Dr. after telling her that it really hurts on the right she had to go there and dig, it was so painful I wanted to cry.
The last few months I am constantly blotted and have also gained 3-4 lb. I lost count on how many times I have been asked if I am pregnant. Even my Dad asked :). So I am 15 lb over my pre-pregnancy weight and that is a lot for a 5 feet 2 inches frame. I have to lose at least 10 lb to feel comfortable.
In other news not related to TTC and health we finally bought a dining set after looking for almost a year. When I have to buy big items I agonize over the purchase and I am always looking for something that doesn't exist. Any how we finally settled on one, didn't think spending $1500 on a set is smart since I am not working and we could have been fine with our old set but DH also wanted to buy so our dining area can look decent.
The one other purchase will have to be curtains for our living room and I still haven't found what I liked without spending over $200. I am assuming another 6 month before I find what I like :).
MH is saying a few phrases and is approaching 2. She is a happy and a fun toddler. I am enjoying ever minute of it.
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I am so sorry you are in so much pain. I can't imagine what you must go through. I know you said that you are emotionally scarred from surgery, but it really sounds like it may be what is needed. If the endometriosis is causing that much pain, it is not just going to go away. And it will likely frustrate any efforts to achieve another pregnancy. That would be my square one if I knew endometriosis was back. Praying for you.
ReplyDeleteit's sad. Your story. It's very sad we live in a great nation that has great medical care but they can't even recognize how sick you really are....Tired, headaches, pain....Does anyone not realize how undertreated your thyroid is?
ReplyDeleteNo one should have to live with endo pain. We have skilled physicians and some of them their life mission is endometriosis. I had stage IV endo and it was removed and I have never had pain since. You should NOT be living in so much pain, picking a surgeron to remove endo has to be done with lots of research. Recovering from a surgery when your stress hormones are not treated will cause severe recovery times. I can totally see why you do not want to go down that road again.
We are not doctors and we expect that when we are sick to go to the doctor to get better. Most doctors do not like it when patients are self advocates but they leave us no other choices because they don't treat the problems. You should not get easily tired, headaches daily, or have joint pain. I know when my thyroid meds are off I get piercing headaches, my neck aches and I'm exhausted.
I think they fail to see just how important the thyroid is.....I don't wish anyone having thyroid cancer but I swear it is was saved me from living a life of hell. I was pushed into learning the thyroid because I had no other choice. I didn't have to question was my thyroid off when all the doctors told me I was within range.....I suffered needlessly for years.
The body is broken but we have medications that will help. My body is broken but the right medication and I feel better than I did when I was 18 years old.
I know you probably hate me....But I think it is a travesty to see women suffer so much needlessly. It's a shame and we deserve better. I think this is where the women's rights come into play. We are all hormones, and dammit they need to get with it.
Oh sweetie. This is just so hard! I do agree with Sew. You need to find some doctors who get it. You shouldn't have to suffer so much. I used to live like this... just surviving... and then I did all my own research and took my thyroid/adrenal health into my own hands, got on the right medicines for me... and then I found a program for "functional endocrinology" which was done by chiropractors... and now I am alive again. It's amazing to live again!!! I'm not "normal" and I'll never be what I used to be, or even what I want to be... but I am SO much better that it is amazing. I am so grateful! I want the same for you! I hate that you have to be in pain and struggle so much. I hope you can find your answers, and some good doctors to help you get there. It can be done, you don't have to live like this. Just *hugs* to you. I know how it feels to be so sick and have no one understand. So hard. Also, hoping for a baby #2 for you... so much hoping!!! *hugs*
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