Thyroid Stuff

In Nov I had my Thyroid hormone levels checked.  Initially only my free T3 was on the low side and I was being treated with slow release T3 since 2010.    In late 2013 I tested low for T4 so I started taking (NDT) desiccated thyroid med in addition to the slow release T3 I was on and felt great for about three months.    My anxiety and fatigue resolved on NDT and I felt a whole lot better than I felt in years.    Then suddenly I wasn't able to tolerate T3 and LDN and I had a lot of sleep disturbance and palpitation.   

I went back to my Doc after being only on NDT for about two months and still tested low for T4 even though I was on NDT.  T3 was within range but not optimal.    So my doc suggested raising the NDT dose to twice a day and cutting T3 dosage by half.  I still couldn't tolerate the T3 but also the 2nd dose of NDT in the afternoon.  So I went back just to taking the NDT in the morning and see what happens.  I attempted to raise NDT and also add the T3 multiple times through out 2014 and couldn't tolerate it.   I was feeling OK on just morning dose of NDT (32mcg).   

Around the same time I initially found out I couldn't tolerate the T3 & LDN, after the blissful 3 months I was on estradiol and progesterone and my pain level due to the endometriosis was up for the obvious reason that I was on estradiol.    To make it worse my doc switched me to cream form of estradiol in an effort to build up my lining which wasn't responsive to the pill form.  That month I had increased pain, heart palpation, chest & shoulder pain and I stopped the medication right away.  And then in March 2014 I attempted to take increased dosage of estradiol pre ovulatory to again build up my lining.   Lets just say that playing around with estradiol made my endometriosis worse.   After that I had a good talk with my DH and we decided that I would stop both estradiol and progesterone permantently and focus on taking herbs to fix my lining.  

So the thyroid and endometriosis are pretty connected.     So back to last Nov visit after a lab work.   My T4 was normal, T3 in the mid range  and high RT3 level.   Here is a summary of the last three different tests over a year.

Date	TSH	T4	FT3	RT3	FT3/RT3
10/25/2013	1.76 (0.450-4.5)	0.53 L(0.82-1.77)	3.2 (2-4.4)	7.8 (9.2-24.1)	41.0
1/31/2014	0.01	0.56 L	2.7	10.1	26.7
10/31/2014	2.29	1.23	2.7	25.9  H	10.4

levels in bracket  normal range

So my doc suggested to cut the NDT level by half (16 mcg in the morning) and add 5 mcg of T3 (cytomel).   My local pharmacy has the NDT on back order so I decided to experiment with the current dose (32 mcgs of NDT) and adding the cytomel at 5 mcg.  Well that didn't work out so well.   Around 2 pm I had an urge to take a nap and took a 2 h nap.  That evening I felt kind of funny and knew that the same thing may happen so I stayed up until 2 pm just to let the feeling pass.  By 4 am I woke up with my heart thumping and slightly numbness feeling of the legs and my lower bell was hurting (more like inflamed)  so much and I felt tense.  As usual I got up, walked around, drank water and stayed up for 1h or so and went back to sleep.    I ignored my Thyroid issues during Christmas break and only took NDT. 

Just this week I tried taking 16 mcg of NDT and 5 mcg of Cytomel in the morning.  I had a headache after about 2 hours which got better after lunch.   Besides that I didn't wake up with palptation.  So the next day I just took the 32  mcg of NDT and the 5 mcg of Cytomel.   I think I think I took it for five days and I just didn't feel right on it.  I still woke up every night and during the days I had headaches and didn't feel good at all. 

I have been thinking about this the past few days and I think the bottom line is I may not need to increase NDT or start T3.  Since the T4 level is within range with out the increased meds may be my body is healing.   I don't have hypo symptoms.   My doctor may suggest taking only T3 but I am not willing to go that route since I had anxiety and fatigue on it.   With the exception of low vitamin D (27-the last test) my vitamin levels are fine.   I am going to keep tweaking my diet, continuing vitamins & pycnogenol and see how it goes.  I will have another test in about two month and see how I have progressed. 

I think taking pycnogenol may be the reason for some of the improvements.   It certainly have helped my cycles.  I don't spot as much and has improved the quality of AF.  In addition the fatigue I got in the afternoons are gone.

Now how to get minimize the endometriosis pain?   That is the biggest obstacle right now and I don't think the pycnogenol has helped much. 

 

Anti-Inflammatory/Paleo like Diet Update

So back in October I started a modified Paleo/anti-inflammatory diet.   So this post is meant to keep me accountable to continue and improve my diet even further.  

So I stuck to most eliminated food.  I have been off gluten for six years now.  In addition to gluten, I cut out most grains with the exception of rice and teff.   I also cut out legumes and decreased my rice intake by at least half and filled my plates with more vegetables.    The little cheese I was eating on a daily bases with breakfast I eliminated.  The only diary that I have been consuming is a little cream with my coffee. 

So first on the measurable accomplishment, I lost about 6 lb and able to wear some of my pre-pregnancy pants.  6lb on my small frame is huge for me.  My tummy is still a little big but not as big as what it used to be.  On most days I don't look pregnant so that is a huge plus.   Another 3-4lb would put me back in all of my old clothes. 

The occasional IBS symptoms are completely gone and I rarely get blotted.    Overall I feel better, I don't get hungry easily like I used to. 

Around Christmas my DH was home for 6 weeks and I kind of slipped a little on eating more vegetables.   Our schedule was tossed in the air; we would get up late and only managed to eat two meals.   I have been making soup (mainly veggie) that I have with breakfast which has helped a lot. 

Where I did not do good is on giving up sugar and eating more fish.  I still have a teaspoon of sugar in my one cup a day coffee and enjoy it so I am not going to give it up.  Besides that I rarely have any sugary food; going off gluten eliminated most of my sugary intake.   I haven't been able to find a good source of fish that don't cost a lot.

The next phase is for me to try to cut our red meat consumption.  We eat it at least 2-3 times a week.   With all that I am eliminating it is hard to find protein source to replace the red meat.  I still need to do better on increasing our vegetable intake.  I am not consistent, some days I manage to cook 2-3 kinds of veggies and other days I barely have one.  I also need to increase my fruit intake.

What is lacking here is the inclusion of exercise.  But that is another blog post.  With the Endo pain, any exercise I incorporate leaves me with increased pain the next day :(



 

Update

It has been a while since I blogged.  Just stepped away from blogging life to enjoy the holidays.

For Thanksgiving I prepped and cooked over two days.   Right before the family arrived I was in so much pain I had to lay down and hide in my bedroom for about 30 min.  My two sisters who are going through some problems decided not to join us and I was very hurt.  It wasn't like they had somewhere to go.  I could have just made it simple and had an easy Thanksgiving with just my husband and toddler MH.   But I wanted to make a good meal for the family and for us to get together and enjoy a meal specially for my sisters who are at a low point in their lives.   I tried to be understanding but with all the pain and fatigue I was a little emotional  but put is aside and had a good time with the people present.   The next day I was on the couch the whole day recovering. 

We spent Christmas afternoon with DH side of the family and it was a lot of fun.  Toddler MH being 3 is now in to gifts.  This is the first Christmas where she actually understood & enjoyed receiving gifts; any time her name was called she marched to Santa to accept her gift.   Since we don't see DH side of the family often it was nice to touch base and just hang out. 

On TTC front I had two normal 28 day cycles with normal flow which made me very happy.  Yes after a year or so of very light cycles I am seeing normal bleeding.  I think it may have to do with a combination of Raspberry leaf tea and pycnogenol that I have been taking for the last six months or so.   It gradually increased in flow over the 6 months period, but it looks like every two cycles it goes back to being 40 day cycle.   Right now I am on cd30 or so and a few days post ovulation.   So I am going to get my lining checked again. 

I saw my Thyroid doctor last month and we are going to half the NDT and add 5 mg of T3.  I haven't been tolerating T3 while on NDT.  I haven't adjusted the dose yet, I wanted to enjoy the holidays in peace and will experiment with the new dose.  I am also going to try LDN once the thyroid hormone dosage is sorted out.  We shall see. 

As usual next Wednesday is our Christmas and I don't plan to invite any one.   We may go to see my aunt or just stay home. 
 

Pycnogenol & other things

So back in July I started taking Pycnogenol supplement.  It is an extract from the pine bark of French Maritime pine tree.  A limited study in endometriosis patients has shown that it is effective in reducing pain.   It is being used for a lot of others things from anti-aging, circulation issues, heart disease , cancer and plenty of other ailments.    I started with 1 capsule (30 mg) and increased it to two capsules after a few weeks. 

I did not notice any reduction in pain but what I noticed is that since I start taking it the number of brown spotting prior to my period has been reduced to a day or none.   I haven't taken it long enough to determine this is real but it is promising.   About a month ago I noticed my stomach was acting up specially in the mornings, I take it after breakfast and dinner.  So I stopped for a few weeks and I have resumed taking it once a day and will go up to two capsule a day.  If anything may be my skin will start looking better and my body will stop growing gray hair :).

I talked about hysterectomy being an option down the line but probably wouldn't help me since I don't have crazy cramps like I use to around my period and removing my uterus would not take care of the endometriosis outside of the uterus.   Well lets just say I am rethinking it.   This cycle after ovulation I felt great, my pain was minimal and my mood was even better, felt hormonally stable and come P + 9 I started cramping.   It started with lower back cramps, feels like labor contractions.   Today is P + 13 and I am still cramping like crazy.  It is on and off but enough to ruin my day.    I took pain killer for two days because I needed to stay out of the house.   It is crazy to have serious cramps for a week. 

I usual host Thanksgiving and I have never made the traditional Thanksgiving meal.  I usual stick with the Ethiopian dishes.  But this year I was thinking of doing strictly Thanksgiving menu.  I have never  oven roasted meat so today I am trying my hand in oven roasting a whole chicken and see how it comes out.   Lets just say I hate touching whole chicken.  My family is not much in to Turkey so I probably will substitute the turkey with chicken.   What I was hoping to avoid making both the traditional Thanksgiving meal and also Ethiopian dishes;   it will just be too much work.    My niece is a college freshman and she is home sick like crazy.   So I asked her if she has any request for Thanksgiving she said to have Ethiopian food.   So now I am stuck, may be I will have my sisters bring the Ethiopian dishes, we shall see.  



   





 

A day in the life of a chronically ill mother

I woke up around 3am with IBS symptom, pain and sweaty hands and feet.   I lay there for a minute assessing the situation;  experience has thought me that it is better to get up and move about, get a glass of water and lay flat on our living room floor to stretch out my back and to relieve some of the pain.

After I calm down, I sit on our sofa and start reading stuff on the internet.   An hour later the pain has subsided a bit and my belly has calmed a bit so I decide to go back to sleep.   So I slowly go up the stairs trying not to wake up my little girl and husband.  No matter how quite I am DH is a light sleeper and always wakes up.  He opens his eyes looks at me and goes right back to sleep.  I curl up against toddler (she sleeps with us) and I drift off.  

The alarm set for 7:30 am.  I hear it and I jump and shut it off.    Usually I just let it go on so it wakes up toddler.  Since I lost an hour I needed to sleep in.    When we finally wake up it is 9 am, I have the same pain but with less intensity.   For a minute my mind goes to a place I don't want it to be, Oh GOD please don't let me die; not good, not good at all and overly dramatic.   I wake up toddler and we cuddle for a bit before washing up and heading downstairs.    I note that I have a stress headache and I am also more anxious than usual.  I brush it off and go about my business.  I make fried egg, toast with peanut butter and apple slices for toddler MH breakfast.

I take my thyroid med and start cleaning up the living room.   The house it too quite.  I rarely remember to put on music but I needed something to occupy my mind away from the pain.  I go through our old cd collection and put on a boys II men CD.  Haven't heard their music in ages.

I haven't mopped my floor for a week.  Hard wood floor is forgiving but I just couldn't let it be today, I have put it off for the last three days.   I sweep and mop the floor and I feel better for at least accomplishing something.   The dishwasher needs to be emptied but I put it off for later.  I make myself omelet for breakfast with leftover baked potatoes from the night before. I make tea, print some work sheets for toddler to scribble on.    I have her sit on her high chair.  We are on letter F.  F for frog, F for foot etc.  She draws and I am happy that she actually now colors the letters instead of just scribbling aimlessly all over the paper.    This occupies her for some time and I am a happy camper and read some blogs, news and check my e-mail.   I was reading a blog post by 'Peace of Christ' and enjoyed her blog post chronicling her day so I decided I would do the same so the reason for this post.

Toddler had enough with drawing so we go out on our deck and it actually feels good.  Not too cold and the sun is finally out.  I crank up the music and start dancing with toddler.  I am one of those people who like to dance in private :).  She loves it, but she loves it more when I hold her and we dance.  My back is not up to that task especially after mopping so I distract her and we play with a pile of leaves on our deck.    I was wondering where my Mom and Dad were, they said they were coming but didn't say the time.  I am actually excited to have company, it is also an early day for DH so he will be coming home at 5.    Tuesdays are nice.

My mom and dad finally show up and they said they already had lunch and all they want is coffee.  Toddler is happy to see her grandparents and my dad is overly excited to see her.  He says "give me my medicine" and she runs to put her hands on his forehead and rub it:).  They play this game every time he sees her.   I start on lunch for toddler and I.   I give her a slice of cheese followed by pasta with no sauce and a banana.  For lunch I have left over chicken, cucumber salad, beets & potatoes that my mom brought.   A small glass of coffee after lunch always puts a smile on my face.  I empty the dishwasher and clean up after lunch. 

My dad leaves and mom is staying the night to help cook for a get together my father has planned with his friends which I agreed to host on Sunday.    I give toddler milk before her nap.  After she finish she gets up and runs around, she doesn't want to nap since we woke up 1.5h later than our usual time.  DH calls and says he is on his way home.  It is now 4:30 pm and he shows up a little earlier than expected.   Stir fry beef with tomato salad served on injera is usually on the menu for Tuesdays.  DH picks up the beef and injera after work.   He decided to head to the gym while I struggle to put toddler to nap.  She is upset over something but she is just tired.   I lay with her on our sofa and she finally drifts off.    I quickly cook dinner which took me about an hour and we head out to the grocery store with my mom to get stuffy for the party while DH eats dinner and toddler naps.    We decide to go to Shoppers since I have $10 coupon.  I love these coupons.

For dinner I warm up some left over veggies and pasta for mom since she is on a fast (no meat).    I make a cheese & chicken sandwich for toddler.   I struggle with her to finish her dinner.  We eat dinner followed by ginger tea with honey.    Toddler is watching TV.   DH is preparing an exam he has to give on Thursday.    We talk more with my mom while I pack up DH's lunch and clean the kitchen.   We decide to call my sister just to check on her even though it is late.  She is going through an ugly divorce.  She has the kids every other week until permanent custody is decided next month.   It is a sad situation. 

My mom goes to bed and DH has finally finished his work so I sit with him and we watch TV for a bit while toddler plays.   Since toddler had a late nap she is not up to sleeping but we call it a night and go upstairs.   DH and toddler read in bed while I take a hot shower, massage my lower back and get ready for bed.    I think I pass out before toddler :)   

This & That

1. Earlier last week I was feeling really crappy.  I woke up one day and just felt irritated and depressed.  Being on cd 12 or so I was baffled.   I was mopping around for a few days and full of anxiety for no reason and bam, I started spotting on cd15 and the anxiety and depression lifted.  The next day AF was here.  Yes I had a 15 day cycle, I should have suspected this since I only had fertile CM right after AF for only two days.  Welcome premenopause or what ever this is.   My last few cycles were long like lasting 40 days.   I think my body is trying to reset after the HCG injection a few months ago but it could also be this is my new normal.   When I took estrogen pre-ovulatory in the spring the same thing happened.  I had a couple of long cycles  and a 16 day cycle followed by two text book 28 day cycles.  Then I took the HCG injection and things haven't been the same ever since.  Lets just hope that things will reset and I will be back to regular cycles.  

2.  I have been thinking about what options I have medically in dealing with the  endometriosis pain.  Premenopause could last years so I need to look at my options now that having another child looks out of reach.   Hysterectomy is not a good option for me since the endometriosis pain is localized outside of the uterus.   I don't have a lot of bleeding or intolerable premenstrual cramps.  What makes my life hell is the pain especially during the ovulatory phase.  I don't think I want a complete hysterectomy, I think removing my ovaries at this point is a no no.   So my options are limited.  My pain level is gradually getting better since I am off estrogen.  I am trying to clean up my diet as much as possible and see if that makes a difference.

3.  Most days I am OK with not having another child but some days it hurts.   When I got pregnant last summer I was hoping for a girl because I wanted my little girl to have a sister.  But recently I have dreams that I am holding a baby boy or when I see a baby boy I have this weird feelings.   I don't know where this is coming from.

4.  This weekend I did not do so good with keeping up with the anti-inflammatory paleo diet.   We went to California kitchen and DH pointed to the option of gluten free pizza and I just had to have it.   Well the curst tested like cardboard and couldn't eat much of it after the 2nd slice.    I also consumed sugar in my coffee and cream.   I have been doing so good with adding extra veggies.  I am not into raw vegetables so may be I will share a few of the simple recipes I use for veggie dishes.

5.  I rarely get colds or flu.  Like may be a cold every two years.  Last time I had a flu is back in 2005 I think.   So I was talking to my cousin who always gets what ever is going around and she takes care  of herself more than anyone I know.  I was telling her that for whatever reason I rarely get colds.  That afternoon I felt kind of off and my throat felt scratch.  Next morning I woke up with a cold.  So I took it easy for a day and by the next afternoon I was feeling like myself.  I better  not say this thing out loud.  I have enough sickness as is, don't want to add to my misery.

Update

1. The new diet where I am eliminating legumes and most grains (except teff & white rice) has been going Ok.  Partly a failure I guess, I just couldn't take myself off sugar in my coffee.  So right now I have a teaspoon of honey with tea in the morning and a teaspoon of sugar with coffee in the afternoon.  In addition, I was only able to give up crème in my coffee for like a day.  I guess I can manage drinking dark coffee when I am at home but I just don't like store bought coffee test without the cream.  One thing I did well with is eating more veggies.   I have included veggies at ever meal including breakfast and I am loving it.  Usually I always have something green for lunch and dinner but breakfast was lacking.  I also try to make two-three vegetable dishes a day so that we get variety.  On Friday we went to Trader Joe's and bought all kind of veggies that would last at least a week.  I also cut down rice portions by half.  The aim for this week is to look into baking with almond floor so I can slowly back away from rice.  The other day I was going to buy it from a local organic place but a small bag of it costs $10.  I figured I can get it somewhere else for cheaper.

2.  Toddler MH turned three two weeks ago.  We had a small party for her at home.   The girl still has no interest in eating cake or for that matter a lot of other things.  I am attempting to have a structured time where she can sit and do some preschool.   She knows all her letters, colors, shapes and can count to 20.   She also knows most of the Amharic letters.  Since she was two she has been watching Amharic learning videos and that helps a lot.  I am struggling with teaching in two languages.   I am thinking that mornings will be reserved for learning in English and may be 30 min in the afternoon we can learn some Amharic.   It is really hard to teach a 2nd language.  Mostly we talk to her in Amharic but since she watches some TV she has a tendency to only talk in English.   She does understand Amharic but she is just not at a point where she can talk with the exception of a few words here and there.   For us it is very important that we teach her Amharic, it is just part of teaching her about her culture.  I often see grown kids complaining that their parents did not take the time to teach them about their culture and language. 

3.  I am reserved about posting pictures of my little girl.  DH doesn't know I have a blog.  Yes it is been four years and he doesn't know I have one.  At the beginning I didn't tell him because I think I thought he would find the idea too weird, especially with something so private as infertility.  I had planned to tell him if I stuck with it but then it is nice to have something so private.   He knows I read blogs, mainly blogs with infertility. 

4.  Around this time of the year I always struggle.  I hate winter.  I love fall but it just reminds me of winter and I get depressed.   I noticed that I am visibly down on cloudy cold days.  The summer has been fun with sitting out on our deck sun bathing while toddler played with her water table.    I have not taken vitamin D in a few months.  My Dr. said the one thing she want me not to stop taking is vitamin D.  But I don't do well on it.   I just can't pinpoint the exact issue I have with it but every time I want to take it my gut says no.   I take prenatal everyday which has a low vitamin D dose.    I will be seeing my Doc in Nov and will see where my levels fall.

5. On TTC front I am on cd12.  For the last few months I have had 40 day cycles.  So unheard of for me with out any meds.  If anything my cycles were short before my 2nd surgery.    This happened after a cycle on HCG.   So right now I am on no meds.  I am done with meds for now.   I am drinking red raspberry tea everyday and taking pycnogenol.  After the HCG cycle I had no CM the entire month so I tried Red Clover tea for one cycle.  It worked wonders with the CM but my period went back to being 2 days of spotting and nothing else.  So I have dropped the Red Clover tea and we will see what this cycle looks like.   A few days ago I had some fertile CM which disappeared and today I am on cd12.  I guess it is going to be another 40 day cycle.

6. In the summer we had a lot of family activities to the point of seeing the large extended family for three weekends straight.   This past weekend it was nice to not have to be somewhere.   We had a slow weekend where we went out for coffee, to the mall, playground and just sitting at home with my hubby.   The next few weekends I am going to make sure we go out and enjoy what is left of the relatively warm weather.  Hope everyone reading is doing well.